When Jacob began his fight in May 2009, I found there wasn't a site out there that had a collection of information for DIPG families just starting the journey. Just One More Day and I Could Be Your Child are great sites filled with information for families, but I wanted a site with step by step information for getting through the initial diagnosis and each day after. I was willing to try anything to save Jacob, but everything was so confusing to me and in so many different places. I needed a "Caring for a DIPG Child for Dummies" site.
Coming soon, The Team Jacob Foundation will launch a site geared towards families just starting this journey and those in the middle of it. We will have information on organic foods and recipes, natural treatments, documents to organize meds and medical bills, and much more.
Please check back here in a few weeks for a link to our new site.
Siblings tend to get lost in the shuffle after a cancer diagnosis. It's especially difficult for younger children who are suddenly apart from their parents for long periods of time. They also have trouble understanding things because they're getting a mixed message that cancer is awful, yet their brother or sister is being showered with attention and gifts.
SuperSibs is a great organization that sends mail to siblings of children battling cancer.
Click on the SuperSibs logo on the left to visit their website.
If you're a friend or relative to a family of a child fighting cancer, please remember to include the siblings. It doesn't take much at all to make them feel special and included. Just a simple card in the mail or a sheet of stickers can help brighten their day.
I Could Be Your Child has been organized to increase awareness of pediatric brain tumors (primarily dipg), provide funding for research and to provide support to children and families diagnosed with a pediatric brain tumor.
Just One More Day for Love, Hope & a Cure is committed to providing information and support for families affected by diffuse intrinsic pontine glioma, promoting awareness, and funding research for a cure.
Founded in memory of Sophie Elizabeth Quayle who was diagnosed with DIPG in February 2007, Smiles for Sophie provides financial support to families of children fighting brain cancer.
Founded in memory of Grace Elizabeth Ekis who was diagnosed with DIPG in January 2007, The organization’s charge is to provide assistance to other families in similar situations, spread awareness of the significance of pediatric brain tumors, and join others in fighting for better treatment options and increased research funding for all childhood brain cancers.
