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welcomehomePage 7welcome pagePage 6about usPage 1Cystic Fibrosis (CF) is the most common, fatal, hereditary disease in the U.S. that affects the lungs and digestive system of about 30,000 children and adults in the United States and 70,000 worldwide. CF is a genetic disorder of the cells that line the lungs, small intestines, sweatglands and pancreas. This defective gene causes the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections as well as obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. Approximately 85% of all people with CF cannot properly digest their food without supplemental enzymes.• About 1,000 new cases of Cystic Fibrosis are diagnosed each year.• One in 3,900 American children is born with CF.• More than 70% of patients are diagnosed by age two.• Only 40% of the CF patient population is age 18 or older.• Ten million Americans are symptomless carriers of the CF gene.• At present, only half of those with CF survive to age 37.Page 2"Sixty-Five Roses" is what some children with Cystic Fibrosis call their disease because the words are much easier for them to pronounce.In 1965 Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had Cystic Fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for Sixty-Five Roses." Mary was speechless.He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for Sixty-Five Roses." Since 1965, the term "Sixty-Five Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "Sixty-Five Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.Page 3"Sixty-Five Roses" is what some children with Cystic Fibrosis call their disease because the words are much easier for them to pronounce.In 1965 Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had Cystic Fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for Sixty-Five Roses." Mary was speechless.He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for Sixty-Five Roses." Since 1965, the term "Sixty-Five Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "Sixty-Five Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.Page 4"Sixty-Five Roses" is what some children with Cystic Fibrosis call their disease because the words are much easier for them to pronounce.In 1965 Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had Cystic Fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for Sixty-Five Roses." Mary was speechless.He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for Sixty-Five Roses." Since 1965, the term "Sixty-Five Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "Sixty-Five Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.Page 5"Sixty-Five Roses" is what some children with Cystic Fibrosis call their disease because the words are much easier for them to pronounce.In 1965 Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had Cystic Fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for Sixty-Five Roses." Mary was speechless.He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for Sixty-Five Roses." Since 1965, the term "Sixty-Five Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "Sixty-Five Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.Page 8info _blahblah.orgnameaddresssubjectmessagePage 7Page 6Page 1Page 2Page 3Page 4Page 5Page 8welcomeWhat is CF?What is CF?What is CF?Sixty-Five Roses?Charity OpenCommitteeContact Uswelcomehome

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